As soon as we go to the doctor, to the hospital Where at the pharmacist, all medical information is recorded and stored within the national health insurance inter-scheme information system (Sniiram). Until now, this personal data was only accessible to public research organizations and an order from the Ministry of Health based on a 2013 law prohibited access to for-profit organizations.
Gold, Le Figaro reveals that the Council of State has requested the cancellation of this decree, which it considers illegal. He asks for its cancellation within four months. All organizations such as insurance companies or pharmaceutical laboratories wishing to conduct a study of general interest will therefore be able to have access to this personal health data.
Access to data in the context of studies of public interest
This decision by the Council of State comes at a time when the new health law is being put in place. This law, promulgated in January 2016, confirms the unconditional and free opening to all aggregated data (Open Data), which pose no risk to privacy. On the other hand, it provides for strict conditions of access to personal data.
Organizations (for profit or not) may have access to it only within the framework of a study of public interest.
It will then be up to the National Institute for Health Data (a public interest group made up of representatives of the State and users of Medicare) to judge the public interest of the study. Then a scientific committee will have to examine the scientific protocol, before the National Commission for Computing and Liberties (Cnil) decides on respect for privacy.
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