Some friends would do anything for you. The young Jonah Pournazarian, 8 years old, suffering from a glycogen storage disorder (a rare liver disease) had the happy experience of it with his “best friend forever” Dylan. The latter has indeed decided to write a book and sell it in order to collect enough money to finance research on the disease from which Jonah suffers.
Considering their friendship to be “as extra as a chocolate bar”, Dylan titled his little book “The chocolate bar“. He recounted his friendship with Jonah and sold each copy for 20 dollars. To date, two years after launching his project, 25,000 copies have been sold in the 50 states of America and in schools in around sixty countries, which allowed him to collect a million dollars.
Jonah is one of 500 children worldwide with this form of glycogen storage disorder for which there is currently no treatment. He is constantly battling dangerously low blood sugar levels and must be fed water and cornstarch through a feeding tube connected to his stomach every hour, the only way not to get sick. severe hypoglycemia.
All the money raised was donated to the laboratory of Dr. David Weinstein, in Florida, which directs the most important clinical research program on the disease. Thanks to this sum, an additional geneticist could be hired in order to launch new research in gene therapy. The young Dylan announced that he would “continue to raise money until his buddy is cured”.
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