The Telethon celebrates its 34th edition on December 4 and 5, 2020. The opportunity to take stock of research around rare diseases, the victories and the needs for continue to fight against these pathologies, in full Covid-19 outbreak. How will the Telethon go this year?
The Telethon will be visible on France TV and more particularly France 2 for 30 hours of live broadcast by Nagui and Sophie Davant. This year’s show is sponsored by Matt Pokora. As usual, the operation consists of raising funds for research, either via the websiteor by SMS (for 5 euros, automatic amount) by writing “DON” to 92007.
The research laboratory associated with the Telethon is also celebrating its 30th anniversary. Genethon, which specializes in gene therapy, also obtained authorization from the National Agency for the Safety of Medicines and Health Products (ANSM) on November 30 to start an international multicenter clinical trial in France for the treatment of Duchenne muscular dystrophy. It is a genetic disease causing progressive degeneration of all the muscles in the body.
Update on the search for three pathologies
This pathology will also be at the heart of this edition of the Telethon, as well as two others: myotubular myopathy (severe or moderate muscle weakness), and spinal muscular atrophy (muscle weakness and atrophy). The show will take stock of the scientific advances of 2020.
Several reports on sick children who have achieved feats – walking on a slackline above the void, paragliding in the Chartreuse massif… – will punctuate this 34th edition. The aim is to remember that these rare diseases, which doomed patients a few years ago, can be treated if research advances. And so that the research can continue, the Telethon collects your donations. A Telethon raffle (composed of works of art and objects) will complete the collection.
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