Who said that a genetic disease prevents you from being a model? Certainly not Melanie Gaydos. The 28-year-old American has ectodermal dysplasia. This disorder, also called Clouston’s syndrome, affects the development of the skin, bones, hair, eyebrows, nails and teeth. It also prevents the body from sweating and regulates its temperature.
The young woman, who confided in Huffington Post American having suffered from his condition in his youth, now declares to be good about himself. “I found a way to accept my disease and my body, in its aspect and its functioning,” she told the media.
As a child, she underwent around 40 operations. Now the young woman decides to stay as she is. She chooses not to wear dentures. After trying implants for a few months, she gives it up. “I managed to live without it. I can eat. Having teeth only makes people around me feel better,” she explains.
Conquering haute couture
Passionate about fashion, she began by studying art at the Pratt Institute in New York. Thinking at first that her illness is incompatible with the profession of a model, she ends up writing to a photographer whose work she admires. His response is not long, he invites her to become his model, as reported by the Daily Beast.
Today his career is on the right track. She has just finished a shoot for the summer pages of iD magazine and has plans in Europe for the next few months. She is also very popular on social networks, Facebook and Instagram.
As for her real goal, haute couture, she knows she will have to show perseverance. “I know I can’t come like a flower and be accepted. People have to understand where I’m from. I have to earn their respect,” she told The Daily Beast.
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