The National Resource Center (CNDR) Palliative Care offers on its website a new folder entitled “Pediatric Palliative Care, the essential”, in order to address the questions that arise in the face of serious illness in a child. A difficult subject to deal with, but which concerns 0.8% of deaths in France, according to 2010 data from the Center for Epidemiology on the medical causes of death.
The dossier addresses questions of a practical, legal or moral nature: how to access pediatric palliative care, how to live with the sick child until his death, how to talk to him about illness and death, how to live after death. of his child … All these questions that can arise after the diagnosis of a serious illness in the child. “Supporting your child in the development of his illness and towards the end of his life is a trying process. Faced with the same situation, everyone can experience it differently,” specifies the CNDR.
Listening staff
Pediatric palliative care is implemented when the treatments are no longer sufficient to stop the disease, and may relate to a more or less long period preceding death. The goal of the nursing staff is to assess and relieve the symptoms and pain of the child, to listen to the emotions of the child and his family, to offer support to cope with any financial and social difficulties in the child. disease and respect each other’s beliefs and spirituality.
A delicate and little-known mission that the interactive platform of the CNDR tries to relay as well as possible.
