On the occasion of the 11th World Psoriasis Day, the France Psoriasis association has put in place practical tools. She created a Psolidaires social network, and an edutainment game “Theo and Psorianauts” to help patients with psoriasis and continue to fight prejudices.
Indeed, the 2.5 million French people with psoriasisare victims of many preconceived ideas. Forced to live with a disease that cannot be cured (but which can be cured), they also suffer a double penalty. They would have difficulty socializing for fear of being judged as contagious, psychologically weak and even sometimes dirty. They endure avoidance in the world of work and public spaces on a daily basis and even experience rejection in married and family life.
Moreover, 4 in 10 French people say they prefer to keep their distance from people with psoriasis and 5% of French people still think that psoriasis is a contagious disease, according to a recent study by the association.
New tools to help the sick
To combat these prejudices and the ignorance of this sickness, the France Psoriasis association has developed a social network, Psolidaires, the first forum allowing patients to discuss with each other and with professionals on various topics related to psoriasis.
“Psolidaires is created because together, we are stronger against psoriasis!” No longer feeling alone, living better with the disease and contributing to research, these are the objectives of this independent and protected social network, ”explains Mélanie Aubin, France Psoriasis project and communications officer.
It also made available a new educational game “Theo and Psorianauts” “which will allow the youngest to have, in a fun way, explanations on psoriasis, advice on daily actions, on received ideas. , but also to manage their psoriasis in their relationship with other children, in the face of mockery or reflections, ”explains the association. The game will be available for free on the website theoetlespsorianautes.fr.
