Uncombable hair syndrome is a rare disease that affects children between the ages of 3 months and 12 years. As hair grows, it gradually becomes dry and messy and cannot be flattened with a comb. This disease is thought to be due to genetic modification of three genes. About a hundred cases have been reported worldwide to date.
Two-year-old Taylor is one of those children with the syndrome. When her hair began to stand on end on the scalp, her parents contacted a German researcher who helped them discover the gene mutation that was causing this syndrome. Both of Talor’s parents carried a mutated gene called PADI3 and this is how the little girl inherited her crazy locks.
To make other parents aware of this disease but especially to teach her daughter Taylor to accept her difference and to love her hair, her mother therefore created a Facebook page called “baby Einstein 2.0 “. “We want to explain to her that, yes, she is different and unique, but that we celebrate and accept her”, she says. The page is followed by more than 10,000 people in the United States.
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