Sanaa, a young candidate for The Voice Kids, has a rare genetic disease called “Ehlers-Danlos syndrome”. In Seven to Eight, the teenager confided in the difficulties encountered on a daily basis.
- Worldwide, Ehlers-Danlos syndrome affects one in 20,000 people.
- The risk of transmission of the disease to the offspring by an affected parent is 50%.
- Anti-inflammatories can help relieve joint pain.
She was one of the finalists for the show The Voice Kids, this Saturday, October 8. Sanaa, a 14-year-old girl, suffers from Ehlers-Danlos syndrome. This “invisible” pathology is caused by abnormalities in one of the genes that control the production of connective tissue. It directly or indirectly affects collagen, the most abundant protein in the body, according toNational Union of Ehlers-Danlos Syndromes.
Ehlers-Danlos syndrome: “There are days when it’s impossible to get up”
This condition is characterized by skin hyperelasticity, joint hypermobility and tissue fragility. Ehlers-Danlos syndrome, which affects the joints, causes abnormal healing, intense fatigue, muscle cramps, abnormal hematomas, scoliosis or multiple sprains. According to theOrphanetthis genetic disease can also cause hernia, organ descent, cervical insufficiency or foot deformities.
In the show seven to eightbroadcast on October 9, Sanaa confided that this pathology caused “very strong pain”. “I am very fragile and I have to be constantly careful. I can fall and the pain will be felt 100 times more than a person who does not have this disease. (…) There are days when I it’s impossible to get up and there are others where everything is fine”, she added. The young singer explained that she had to constantly be extra vigilant when walking because of her balance problems. “I often had to go to the hospital, have casts, splints.”
Ehlers-Danlos syndrome ‘will be there all the time, all my life’
According to MDS Manual, no treatment can cure this genetic pathology. On the other hand, it is possible to heal wounds. “They are difficult to suture, as the stitches tend to come loose due to the fragility of the tissues”, can we read on his website. An adhesive bandage or special medical glue can make it easier to close the wound, leaving a less visible scar.
For now, Sanaa has little information about the evolution of his pathology. However, she does not lose hope. “My difference is my strength! This disease will be there all the time, all my life. So I cannot see it as a weakness and I have to learn to live with it”, she concluded.
