Milo Browne, from North Shields, is 4 years old. The little boy has a unknown disease doctors who naturally gave him his name: “The state of Milo”. The child will never be able to crawl, stand or walk, and is unable to sit up on his own without being fully supported. The little one is fed by a tube which passes through its intestine because his stomach is too sensitive to eat normally. Her condition requires continued care from her parents, Stephen Browne and Laura Davidson.
Very jerky movements of the arms and legs from birth
When Milo was only one day old, Ms Davidson and her partner became concerned that something was wrong with their son. They noticed very jerky movements of the arms and legs but tried to reassure themselves by assuming that this phenomenon would subside. However, this was not the case and since the first days of life, the child has undergone x-rays, tests and other examinations in the hospital to rule out a number of medical problems, including chromosomal disorders.
The disease would have mutated and would be more severe
Initially, doctors diagnosed disease called M3BHA, which affects only 9 people in the world. Since then, practitioners have changed their minds, noting that his disorder was much more severe, obviously showing a mutation that has never been seen before. Milo’s physiotherapists also found that the boy’s condition did not improve significantly and that he would be much more difficult to manage with age.
Over € 21,000 worth of work to help Milo
After several years of fundraising, the family raised and spent £ 19,000 (almost € 21,400) on rehabilitation work in their home to help Milo live better in the accommodation between his hospital visits. . The parents of the child, who also suffers from visual disturbances, could see the difference for him. “It has changed our life because there are a lot of days he is not doing well and we are unable to get out,” said his 32-year-old mother. Today the house is equipped with fiber optic lights, a projector and specialized play equipment in an effort to give Milo the chance to relax.
The “champion mum” tries to raise funds for other families
They are now trying to raise funds to buy sensory equipment that could help other families. “After seeing how much Milo has raised, we want to raise so much money to help other kids in the same position,” said Laura Davidson. This young mother’s devotion to her son was recognized with a nomination in the form of “Champion Mum”!
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