The ALS Ice Bucket Challenge is celebrating its 10th anniversary! An opportunity to relaunch the challenge to raise funds for amyotrophic lateral sclerosis (ALS).
- “The ARSLA and the Invincibles – All united are organizing, from June 1st to July 31st, the Défi Givré to celebrate the 10th anniversary of the Ice Bucket Challenge, explains the ARSLA. This operation aims to raise awareness among the general public and collect 1 million euros for research into Charcot’s disease.”
- The challenge of research today is multiple: detecting biomarkers to identify patients according to the form of ALS present, then finding treatments to slow down or even reverse the disease; which could save around 1,600 people each year in France.
- ALS is a motor neuron disease that causes progressive paralysis, leaving the patient unaware of everything that is happening in his or her own body, with a fatal outcome when the respiratory muscles are affected.
A bucket of ice water on the head… but for a good cause! This is the challenge launched for the first time in 2014 on social networks, in order to raise awareness among the general public about amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig’s disease. 10 years after this global success, a new version was born; the “Frozen Challenge”. The goal is still the same: to raise as much money as possible to finance research into this incurable neurodegenerative disease.ARSLA and the Invincibles – All United are organizing, from June 1st to July 31st, the Défi Givré to celebrate the 10th anniversary of the Ice Bucket Challenge, explains the association for research into amyotrophic lateral sclerosis (ARSLA). The aim of this operation is to raise awareness among the general public and to collect 1 million euros for research into Charcot’s disease.”
ALS: why raise funds?
“ALS (…) is a disabling and incurable neurological disease, recalls ARSLA. With 5 people being diagnosed in France every day, it is more important than ever to take action.”
Amyotrophic lateral sclerosis is a motor neuron disease that progressively leads to the loss of motor neurons in the brain and spinal cord. In concrete terms, it is characterized by progressive paralysis, locking the patient in conscious awareness of everything that is happening in his own body, with a fatal outcome when the respiratory muscles are affected. Life expectancy at the time of diagnosis is very short and averages 3 to 5 years.
The challenge of research today is multiple: detecting biomarkers to identify patients according to the form of ALS present, then finding treatments to slow down or even reverse the disease; which could save around 1,600 people each year in France.
Help research against Lou Gehrig’s disease by taking up the Frozen Challenge
To participate in the Frozen Challenge, you need a cell phone with a camera and a bucket of ice water.
- Step One: Film yourself pouring a bucket of ice water over your head.
- Step Two: Challenge 3 people of your choice to do the same.
- Step 3: Make a donation at defigivre.org to support research.
- And finally: Post the video on your social networks with the hashtags #défigivré and #icebucketchallenge, and mention the accounts @arsla_and @les_invincibles_au.
Several personalities have already participated, including presenter Denis Brogniart, doctor Michel Cymes, journalist Thomas Sotto and freediver Alice Modolo.
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-1721998247.jpg "Lou Gehrig’s disease: A devastating neurological disease in the spotlight")
